Evaluating patient-reported outcome measures for the palliative and end-of-life care settings in Austria
Date: 2021 – 2023
Funding: FWF / Lise – Meitner Programm
Collaborator(s): Österreichische Palliativgesellschaft, Dachverband Hospiz
Information: Claudia Fischer (PI), Judit Simon (co-PI), Elisabeth Saly
Palliative care is a discipline that aims to improve the quality of life (QoL) of patients and their families facing the challenges associated with life-threatening illnesses through the prevention and relief of suffering. Currently it is unknown which of the available instruments assessing patient-reported QoL can produce reliable and valid results for the purpose of quality assurance, evaluation and planning of services within the context of palliative care.
In course of the PallPROMs project, a national, multi-center prospective cohort study, which is lead by the DHE, three QoL questionnaires (EQ-5D-5L, IPOS, ICECAP-SCM) are repeatedly assessed in patients admitted to 16 palliative wards in Austria over a one-year study period. The derived data will allow conducting several methodological analyses that will help to increase the knowledge of suitable non-clinical outcome measures for the palliative care field (e.g. feasibility, actionability and validity). In a final step, it will be analyzed whether the QoL scores derived from the generic QoL questionnaires, can also be used for (economic) evaluations by predicting scores from the palliative care specific ICECAP-SCM scores.
- Fischer C. Die PallPROMs-Studie: Qualitätsmessung in der Palliativmedizin mittels Patient-reported Outcomes Measures. Universum Innere Medizin. 2022 Feb.